West Syndrome

Why is Purple Day so important?

Purple day? As in… a day all about the colour purple!? Sadly not, although I would love a day dedicated so such an awesome colour! Purple Day is a day dedicated to raising awareness about Epilepsy. But why is it so important to raise awareness. I mean so many people already know what epilepsy is,…… Continue reading Why is Purple Day so important?

Meal Ideas

No Fuss Meals for Fussy Eaters – Mild Coconut Curry

As I’m sure you’re all aware…. Nova is a fussy eater. So much so for the last year and a half we have been working to combat her oral aversion. Whilst we have made slow progress… progress is progress! All the food she eats is home cooked by yours truly and her dad. And whilst…… Continue reading No Fuss Meals for Fussy Eaters – Mild Coconut Curry

Prematurity

What I wish someone had told me BEFORE having a preemie..

A lot of the time, premature birth just happens. There is no plan, and you certainly weren’t expecting it. But let’s say you knew you were going to give birth early. I know if I have any more babies they will always be early because I had a classical c section. What would you like…… Continue reading What I wish someone had told me BEFORE having a preemie..

Prematurity

Meet our miracles

Hello readers! Now we all know who Nova is. And she has quite a story to tell, but she isn’t the only preemie warrior out there. Every day countless babies across the globe are born prematurely. And each one of these has their own unique and beautiful tale to tell. I reached out to some…… Continue reading Meet our miracles

Family · Prematurity · West Syndrome

Why we opted for a PEG

No one ever goes into parenthood expecting to make difficult decisions for your child. No parent should be faced with the prospect of putting their child through surgery, whether medically necessary or recommended. I take my hats off to the many parents I know who have already been faced with this decision. I know I…… Continue reading Why we opted for a PEG

Meal Ideas

No fuss meals for fussy eaters – Fish Pie

As I’m sure you’re all aware…. Nova is a fussy eater. So much so for the last year and a half we have been working to combat her oral aversion. Whilst we have made slow progress… progress is progress! All the food she eats is home cooked by yours truly and her dad. And whilst…… Continue reading No fuss meals for fussy eaters – Fish Pie

Family · Prematurity · Product Reviews · West Syndrome

Toy recommendations with disability in mind!

We’ve all been there. Looked at despair through the catalogues of toys special needs sites have. Been appalled at the prices they make up, all because they are designed with children with special needs in mind. It’s disgusting how much that tag… “special needs” can bump prices up. But fear not, it is possible to…… Continue reading Toy recommendations with disability in mind!