I spend a lot of time on here talking all about the things Nova struggles to do… or even can’t do. And thats great to raise awareness…. but this is also a blog to celebrate how far Nova has come…. so let’s do just that! Nova can…. Smile the biggest most cheesiest smile ever. Say…… Continue reading Let’s focus on what Nova can do for a change!
If you we’re watching Nova’s Facebook Page yesterday, you will already know Nova was at Birmingham Children’s Hospital for an ABR hearing test (The Auditory Brainstem Response (ABR) test is a helpful tool in determining a child’s ability to hear. The test uses a special computer to measure the way the child’s hearing nerve responds to different…… Continue reading We have answered one question, but now we have more to ask…
I hear this question quite often when out and about with Nova. “What’s wrong with her?”. It’s a question I absolutely hate. There is nothing wrong with Nova. She is happy, and healthy and doing brilliantly despite what she’s been through. Don’t get me wrong, I completely get why people ask this. 99% of the…… Continue reading What’s wrong with her?
If my friends and family are reading this, you will likely know that a few months back Nova was diagnosed with something called CVI (Cortical Visual Impairment). It’s a type of visual impairment where the eyes function perfectly, and they can see perfectly too…. however the signal becomes scrambled before reaching the brain. It’s sort…… Continue reading How can you help a child with CVI… and what even is CVI!?
Food has been a massive issue for Nova for a few months now, so much so she is tube fed to make sure she gets enough calories. Without her tube, Nova would be more underweight than she already is…. Food has caused many tears and tantrums in our household, with Nova point blank refusing to…… Continue reading Why I’m over the moon Nova ate ❤
Feeding pumps. They’re a pain in the butt. They beep a lot and they flash “Occ” at least once a night where Nova the incredible wriggling baby is concerned. And for some strange reason, the manufacturer of the giving sets seem to think that having a tiny space between pump and milk is perfectly acceptable…… Continue reading My Little Preemie Presents….. The incredible Milk Hanger!
If someone had told me a year ago this is how life would turn out, I’d have never have believed them. This time last year, Nova was a normal healthy baby despite being born 11 weeks early. She was developing as expected, meeting all her milestones and had the biggest smile ever when mummy and…… Continue reading Don’t sweat the small stuff…
So who are Little Warrior Cards? And why should YOU be interested? It’s a good question, and let me answer it for you. Little Warrior Cards is an organisation run by volunteers who send cards to Sick and Disabled children across the globe. It is run solely by volunteers, who use their money their time and…… Continue reading What exactly is a Little Warrior Card?
My Little Preemie 