Family · Prematurity · West Syndrome

How to prepare for a hospital stay with your child

No one ever wants their child to be in hospital, especially when it wasn’t planned. But if you do have a date for a procedure, it’s always best to be prepared! Nova’s been in and out of hospital since birth, and during each visit I have become more and more savvy about what should be…… Continue reading How to prepare for a hospital stay with your child

West Syndrome

Why is Purple Day so important?

Purple day? As in… a day all about the colour purple!? Sadly not, although I would love a day dedicated so such an awesome colour! Purple Day is a day dedicated to raising awareness about Epilepsy. But why is it so important to raise awareness. I mean so many people already know what epilepsy is,…… Continue reading Why is Purple Day so important?

Family · Prematurity · West Syndrome

Why we opted for a PEG

No one ever goes into parenthood expecting to make difficult decisions for your child. No parent should be faced with the prospect of putting their child through surgery, whether medically necessary or recommended. I take my hats off to the many parents I know who have already been faced with this decision. I know I…… Continue reading Why we opted for a PEG

Family · Prematurity · Product Reviews · West Syndrome

Toy recommendations with disability in mind!

We’ve all been there. Looked at despair through the catalogues of toys special needs sites have. Been appalled at the prices they make up, all because they are designed with children with special needs in mind. It’s disgusting how much that tag… “special needs” can bump prices up. But fear not, it is possible to…… Continue reading Toy recommendations with disability in mind!

Family · Prematurity · West Syndrome

I still don’t get why this is even a debate to some people…

I don’t even know why I still see this same argument time and time again on my Facebook timeline. People arguing and debating about a subject that shouldn’t even be a debate in the first place. Who should be entitled to use the wheelchair spaces on a bus. Now you would think the answer would…… Continue reading I still don’t get why this is even a debate to some people…

Prematurity · West Syndrome

Everyone needs a helping hand.

Everyone needs a helping hand. Everyone needs someone to talk to. Everyone needs a shoulder to cry on, and an ear to talk to. The reality is, not everyone has this support at home. Some people are so isolated, and find it hard to cope with their birth, their child and their disability or any…… Continue reading Everyone needs a helping hand.

Prematurity · Product Reviews · West Syndrome

Nova and stickers and bears… oh my!

Having a sick or disabled child can be really tough. It can be draining, both emotionally and physically. Since having Nova, I have found comfort in some of the charities and companies out there that make or do things specifically to brighten a child’s life. I’ve listed below some of my favourites, I have been…… Continue reading Nova and stickers and bears… oh my!