Family · Prematurity · West Syndrome

I still don’t get why this is even a debate to some people…

I don’t even know why I still see this same argument time and time again on my Facebook timeline. People arguing and debating about a subject that shouldn’t even be a debate in the first place. Who should be entitled to use the wheelchair spaces on a bus. Now you would think the answer would…… Continue reading I still don’t get why this is even a debate to some people…

Prematurity · West Syndrome

Everyone needs a helping hand.

Everyone needs a helping hand. Everyone needs someone to talk to. Everyone needs a shoulder to cry on, and an ear to talk to. The reality is, not everyone has this support at home. Some people are so isolated, and find it hard to cope with their birth, their child and their disability or any…… Continue reading Everyone needs a helping hand.

Prematurity · Product Reviews · West Syndrome

Nova and stickers and bears… oh my!

Having a sick or disabled child can be really tough. It can be draining, both emotionally and physically. Since having Nova, I have found comfort in some of the charities and companies out there that make or do things specifically to brighten a child’s life. I’ve listed below some of my favourites, I have been…… Continue reading Nova and stickers and bears… oh my!

Family · Prematurity

How Nova came into the world, 11 weeks before she was meant to….

I’ve not often talked about Nova’s entry into the world. Many people know she was early, many more don’t know the reasons or even the finer details. Raising awareness is one of my biggest reasons for starting this blog, and if by sharing the story of Nova’s birth is what does that, then here goes!…… Continue reading How Nova came into the world, 11 weeks before she was meant to….

Family · Prematurity

Twinkle twinkle, my little star

Having a premature baby can be one of the most traumatic and stressful times of a parent’s life. Different people find different ways of coping with that happened to them, for me I wrote a poem. I don’t claim to be a literary master, but it helped me let my thoughts and feelings out. I’ve…… Continue reading Twinkle twinkle, my little star

Prematurity

Pre-Eclampsia – What is it?

Seeing as May is Pre-Eclampsia awareness month, it seems only fitting I try to raise some awareness about something that can happen to any pregnant woman. As some of you may know, the reason for Nova’s early arrival into the world was due to Pre-Eclampsia that had likely gone un-diagnosed for a few weeks. Because…… Continue reading Pre-Eclampsia – What is it?