Prematurity

What is corrected age? Why is it so important?

Many people don’t know that premature babies actually have 2 different ages. Their “Actual” and “Corrected” age. But what do these two ages mean, and why is it so important that they both exist? First things first, let’s find out what they both actually mean: What is “Actual Age”? Actual age is counted from the…… Continue reading What is corrected age? Why is it so important?

Family · Prematurity · West Syndrome

How to prepare for a hospital stay with your child

No one ever wants their child to be in hospital, especially when it wasn’t planned. But if you do have a date for a procedure, it’s always best to be prepared! Nova’s been in and out of hospital since birth, and during each visit I have become more and more savvy about what should be…… Continue reading How to prepare for a hospital stay with your child

Prematurity

What I wish someone had told me BEFORE having a preemie..

A lot of the time, premature birth just happens. There is no plan, and you certainly weren’t expecting it. But let’s say you knew you were going to give birth early. I know if I have any more babies they will always be early because I had a classical c section. What would you like…… Continue reading What I wish someone had told me BEFORE having a preemie..

Prematurity

Meet our miracles

Hello readers! Now we all know who Nova is. And she has quite a story to tell, but she isn’t the only preemie warrior out there. Every day countless babies across the globe are born prematurely. And each one of these has their own unique and beautiful tale to tell. I reached out to some…… Continue reading Meet our miracles

Family · Prematurity · West Syndrome

Why we opted for a PEG

No one ever goes into parenthood expecting to make difficult decisions for your child. No parent should be faced with the prospect of putting their child through surgery, whether medically necessary or recommended. I take my hats off to the many parents I know who have already been faced with this decision. I know I…… Continue reading Why we opted for a PEG

Family · Prematurity · Product Reviews · West Syndrome

Toy recommendations with disability in mind!

We’ve all been there. Looked at despair through the catalogues of toys special needs sites have. Been appalled at the prices they make up, all because they are designed with children with special needs in mind. It’s disgusting how much that tag… “special needs” can bump prices up. But fear not, it is possible to…… Continue reading Toy recommendations with disability in mind!

Family · Prematurity · West Syndrome

I still don’t get why this is even a debate to some people…

I don’t even know why I still see this same argument time and time again on my Facebook timeline. People arguing and debating about a subject that shouldn’t even be a debate in the first place. Who should be entitled to use the wheelchair spaces on a bus. Now you would think the answer would…… Continue reading I still don’t get why this is even a debate to some people…