Family · Prematurity · West Syndrome

I still don’t get why this is even a debate to some people…

I don’t even know why I still see this same argument time and time again on my Facebook timeline. People arguing and debating about a subject that shouldn’t even be a debate in the first place. Who should be entitled to use the wheelchair spaces on a bus. Now you would think the answer would…… Continue reading I still don’t get why this is even a debate to some people…

Family

Why our life is so much better, just one year down the line..

I don’t often talk to people about what goes wrong in my life. Im a “Grin and bear it” kind of person. Since starting this blog though I’ve felt able to coherently get my thoughts down. Its quite therapeutic really! What I’m sharing with you today is just how much someones life can change for…… Continue reading Why our life is so much better, just one year down the line..

Family · West Syndrome

#ExplainEpilepsy

Your friends on Facebook, did you know at least one of them is likely to have epilepsy, or be affected by it in some way? It’s a hidden disability, and one not often talked about. River Island have teamed up with Young Epilepsy and Epilepsy Society to challenge the stereotypes, and remove the stigma. So….…… Continue reading #ExplainEpilepsy

Family · Prematurity

How Nova came into the world, 11 weeks before she was meant to….

I’ve not often talked about Nova’s entry into the world. Many people know she was early, many more don’t know the reasons or even the finer details. Raising awareness is one of my biggest reasons for starting this blog, and if by sharing the story of Nova’s birth is what does that, then here goes!…… Continue reading How Nova came into the world, 11 weeks before she was meant to….

Family · Prematurity

Twinkle twinkle, my little star

Having a premature baby can be one of the most traumatic and stressful times of a parent’s life. Different people find different ways of coping with that happened to them, for me I wrote a poem. I don’t claim to be a literary master, but it helped me let my thoughts and feelings out. I’ve…… Continue reading Twinkle twinkle, my little star

Family · Prematurity · West Syndrome

Just being “normal”

Being normal. Fitting in. Blending into the crowd. It’s something we take for granted, we don’t even think about it. We just do it. Unfortunately that’s not something Nova, or many other children like her can do. She doesn’t fit in, she doesn’t just blend into a crowd. People struggle to see past the tube…… Continue reading Just being “normal”